Links
This is not a comprehensive list of links of all of the information out there on CDH. I hope that by providing these links, you will find some information that will help you. I have tried very hard to choose reputable sources of information; some may contradict with another. This is due to the lack of proven treatment for CDH and different approaches to such treatment. Talk with your medical staff to choose the course of action that is most appropriate in your case. Do not rely on any information found in these links.
When you click on a link, a new window will open. Please let me know if any of these are dead links or if you would like for me to add a link by e-mailing me. Some pages are in PDF format and you need the free Adobe Reader. That can be obtained here.
Support sites and sites that offer valuable services
- A Heartbreaking Choice - Supportive and informative website for those facing termination of a pregnancy for medical reasons
- Baby Angel Pics - free photo retouching, removing medical equipment
- BabyCenter.com Termination for Medical Reasons Support Board
- Breath of Hope - an online support group
- CaringBridge - free websites/blogs
- CHERUBS - the original CDH presence on the web
- Cloud Nyne Photo Designs - photo collages and videos, donations benefit CDH research
- My Tangible Peace - free memorial dolls (please consider a donation)
- Ronald McDonald House Charities
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Children's Hospitals and Treatment Centers (pre- and post-natal care)
- The Brown Fetal Treatment Program
- Children's Hospital Boston
- Children's Hospitals and Clinics of Minnesota
- Cincinnati Children's Hospital Medical Center
- Fetal Care Center of Cincinnati
- Shand's HealthCare
- Texas Children's Hospital - CDH
- The Children's Hospital of Philadelphia
- The Children's Hospital - OU Medical Center
- The University of California, San Francisco (UCSF)
- Department of Surgical Pediatrics, The Royal Hospital for Sick Children, Glasgow
- ECMO Inventor Retires, The Ann Arbor News
- Extracorporeal Membrane Oxygenation from eMedicine.com
- Introduction to ECMO for Parents, USC
- Monroe Carell Jr. Children's Hospital at Vanderbilt
- A prospective study of the outcome for fetuses with diaphragmatic hernia from JAMA
- CDH from eMedicine.com
- CDH from eMedicine.com (different)
- CDH from the American Journal of Respiratory and Critical Care Medicine
- CDH from the North Carolina Guide to Baby Care
- CDH from Pediatrics, offical journal of the AAP
- CDH: Our Experience - A Brief Review
- CDH Overview from Gene Reviews
- CDH: The Neonatologist's Perspective
- CDH: The perinatologist's perspective from Pediatrics in Review
- Defect Size Determines Survival in Infants With Congenital Diaphragmatic Hernia from Pediatrics
- Diagraphmatic Hernia from MedlinePlus
- Diaphragmatic Hernia from Texas Department of State Health Services
- Diaphragmatic Hernia from TheFetus.net
- Diaphragmatic Hernia Repair from MedlinePlus
- Donor Funds Breathe New Life into CDH Research from Dream: The Magazine of Possiblities
- Handbook of Genetic Counseling/CDH from WikiBooks
- humpath.com: Congenital Diaphragmatic Hernia (WARNING: graphic photos)
- humpath.com: Diaphragmatic Malformations (WARNING: graphic photos)
- Lung Development A Breath of Fresh Air (WARNING: graphic photo)
- Megaesophagus in CDH from the Indian Journal of Surgery
- Nihilism in the 1990's: The True Mortality of CDH from Pediatrics, the official journal of the AAP
- Real Hope for CDH: Kay's Kids
- Texas Pediatric Surgical Associates
- The Toronto Star: After grief, crusader on a mission (Lauren Ziebart)
- Brain-Type Natriuretic Peptide in the diagnosis... from Pediatrics, the official journal of the AAP
- Graphic/drawing of PPHN
- Hearing loss a threat to children who survive... from Science Blog
- INO in PPHN refractory to to high-frequency ventilation from Critical Care
- PPHN from KidsHealth
- PPHN from the Lucile Packard Children's Hospital at Stanford
- PPHN from NicuWeb
- PPHN from UCSF
Treatment studies
- A genetic model for a central (septum transversum)... from PNAS
- Airway Smooth Muscle Dysfunction... from the American Journal of Respiratory Cell and Molecular Biology
- Breathing Problems in Babies
- Chylothorax After Repair of CDH - A Case Report
- Gastric volvulus with perforation in association with CDH from The Indian Journal of Pediatrics
- Improvement of pulmonary hypoplasia... from AJP, Lung, Cellular and Molecular Physiology
- Improving Survival of Neonates with Isolated CDH
- Late vs. early surgical correction of CDH
- Late vs. early surgical correction of CDH from Cochrane
Search engines and other links