Welcome to A Rainbow of Hope!

If you have found this website, you probably know or knew a person with CDH. Or maybe you were born with it. You might be expecting a child diagnosed with CDH. Or you are a friend, family member or stranger touched in some manner by this birth defect. The purpose of this website is to provide information and maybe some comfort.

All of the information found here was compiled from various sources; the main source being the doctors, nurses and surgeons who treated our son in his battle with a congential diaphragmatic hernia. These knowledgable professionals are located at The Children's Hospital at OU Medical Center in Oklahoma City, OK. Information has also been obtained from various FAQ’s and medical resources. Links to these resources can be found in the Links section of this website.

There is an attempt to keep the presentation of material here fairly simple with a minimal amount of complex medical terms. However, many terms cannot be avoided and if you are dealing with CDH firsthand, you probably recognize many, if not most, of them. Much of the information found here is directed toward parents of CDH children but can be adapted for friends and family members or your specific situation.

Disclaimer

I am not a medical professional nor an expert of any kind. I am just a parent who lost her son to CDH and hopes to help others. Everything on this website is for informational and/or educational purposes only. There is no intention to promote any kind of treatment for any medical issue. Nothing here is intended to be used in place of proper medical care and advice.

This website is not formally associated with any other medical, informational and/or CDH website or organization; it is the creation of one person as a stand alone website.